Cancer of the Knee

It turns out that my cousin has had a lump the size of a walnut sitting on the back of her knee for the past two years but was afraid to get it checked... and now it's the size of a tennis ball and wrapped around her vascular system. She went in and got the official word - it's cancer. She'll be starting chemotherapy on Tuesday. Unfortunately, due to the way it's wrapped around in there, they can't operate on it. If the chemo doesn't work, she may lose her leg.

The day just gets better and better.

posted on Friday, September 05, 2003 11:38 AM | Filed Under [ General Ramblings ]

Comments

Gravatar # Re: Cancer of the Knee
by Patricia at 1/13/2004 1:54 PM
My 5 year old son has knee ligament cancer and I don't know what to expect. His lump was the size of the tip of a pinky finger. It was removed and turned out to be cancer.
Gravatar # Re: Cancer of the Knee
by Karen Lawless at 1/29/2004 4:27 PM
I have intense pain to the right of my left knee. Dr. x-rayed found no fracture..said there was very little arthritis, if any. Neurologist tested for muscle disease and nerve damage...did an MRI. All tested negative, for muscle disease, nerve damage or pinched nerve. I worry that it could be cancer. What tests can be done to rule this out?? I feel no one believes the real pain that I'm experiencing.
Gravatar # Re: Cancer of the Knee
by Travis at 1/30/2004 11:05 AM
Unfortunately I really don't know much about the whole thing; I know what my cousin was diagnosed with, but I don't know how they figured it out. I know she went through a lot of blood tests and things. That's about all I can offer; I'm not remotely qualified to give advice in this area. Sorry.
Gravatar # Re: Cancer of the Knee
by GERALDINE at 2/12/2004 9:04 AM
THIS MESSAGE IS FOR KAREN LAWLESS. THE PAIN YOU DESCRIBE IS EXACTLY THE SAME PAIN I HAVE HAD FOR 3 AND A HALF YEARS. IT WAS ONLY DIAGNOSED LAST JUNE AS PIGMENTED VILLONODULAR SYNOVITIS. I HAVE EXTREME PAIN TO THE RIGHT OF MY LEFT KNEE CONSTANTLY, SOMETIMES SO BAD I CAN'T WALK. I TOO THOUGHT NO ONE BELIVED ME.
Gravatar # Re: Cancer of the Knee
by Karen Lawless at 2/12/2004 2:53 PM
In response to Geraldine. What are they doing for your pain? Did you have surgery? It just seems that my symptoms are so like yours. Thanks for your response.
Gravatar # Re: Cancer of the Knee
by GERALDINE at 2/13/2004 11:25 AM
Hello Karen, I had an accident on the 4 August 2000 when a steel door hit my knee. I had all kinds of treatment ie, physio, hydrotherapy, accupuncture to resolve what the doctors had told me was a small ligament tear in my knee. This had been diagnosed from an x-ray and MRI scan just after the accident. Nothing helped the pain in my knee and I did not seem to make any further progress. I was back and forward to the hospital where they kept telling me they didn't know what was wrong. After a while they said it may be the fat pad around the knee cap which protects the knee, they thought part of it had become trapped under the knee cap. Surgery was discussed but I decided not to have any simply because I was'nt convinced they were sure that this was the problem. To cut a long long story short the pain and problems in my knee continued until March 2003 when I couldn't take it any more I asked them to do another MRI scan since it had been over 2 years since the first one, they agreed and 2 weeks later I got a call from the hospital to come staright up. I was panicking, with my first thoughts being cancer. I was told that I had a growth in my knee and that I would have to undergo surgery to remove it and investigate more, the doctors did not know what it wasand were very surprised that something abnormal had showed up, although I felt like screeming see I told you I there was something wrong. The growth was sent to be anaylized. I was back to the hospital 2 weeks after surgery for the results, I was told it was a benign tumour which had formed in my knee as a result of PVNS (Pigmented Villonodular Synovitis)This is a disease which affects the lining of the joints and causes growths in the joint. You will find loads of information on PVNS on the internet which is what I did. I eventually had surgery in July 2003, 3 years after my accident. Although my PVNS was caused by an accident this is not always the case, there are more cases of people developing it who never suffered any trauma to the knee. Un fortunatley even with surgery it is a disease that will reoccur and further surgery may be required.Go back to your doctor and ask about PVNS if it's been a while since you had a scan ask for another one. Don't give up I know it's hard but the way I look at it you don't get pain in your knee for no reason.
Keep in touch Geraldine McArdle
Gravatar # Re: Cancer of the Knee
by Karen Lawless at 2/13/2004 12:09 PM
To Geraldin McArdle. Thank you so much for your quick response. I have printed info that I received on this site. It is very informative. I go for another MRI this afternoon. I will show this article to my Dr. Hopefully, they will be able to at least concur or rule it out. I know my body, and I don't have to make up imaginative pain. Thanks so much for your information. Karen L.
Gravatar # Re: Cancer of the Knee
by Travis at 2/13/2004 12:30 PM
Just an update (since this thread seems to be active and my mom wants me to set the record straight here) - my cousin's final diagnosis ended up being "soft tissue sarcoma" and it was in the fatty part of her leg just behind her knee. Just, you know, FYI.

I'm glad the folks here are finding information, though. I'm pleased to provide a sense of community and help out where I can. Feel free to continue communicating in this area; you're more than welcome to be here, and thanks for stopping in.
Gravatar # Re: Cancer of the Knee
by Karen Lawless at 2/13/2004 12:51 PM
Thanks to you too, Travis...hope all is going well with your cousin.

Karen L.
Gravatar # Re: Cancer of the Knee
by GERALDINE at 2/15/2004 9:41 AM
To Karen, Let me know how you get on. I know how hard it is, but you have to keep pushing for answers. A full blood count would also help to rule out any other disease in the knee such as cancer, to put your mind as rest. It's very easy to think the worst when no one seems to have any answers. It's taken me over 3 years for a correct diagnosis, and although i'm still in a lot of pain I do feel better that I least I know whats causing it. I'm going for another MRI next month, the doctors think PVNS is back, this time at the back of my knee. I'm not sure if this website is a worldwide thing, I came across it by pure chance so i'm not sure what country your from or the type of health service you have. This can certainly make a difference.
Gravatar # Re: Cancer of the Knee
by Karen Lawless at 2/15/2004 5:26 PM
Geraldine.....Thank you so much again. I'm from USA, in the event, this is a worldwide site.
Will try to keep you posted.
Karen L.
Gravatar # Re: Cancer of the Knee
by GERALDINE at 2/20/2004 11:24 AM
Karen, must be worldwide, i'm from Scotland, that would account for the strange times that were coming up at the end of my posted message.
Geraldine
Gravatar # Re: Cancer of the Knee
by GERALDINE at 2/20/2004 11:26 AM
It's actually 4.24pm here in the afternoon.
Geraldine
Gravatar # Re: Cancer of the Knee
by Karen Lawless at 2/20/2004 3:06 PM
This is so neat...to be able compare where ever we are.....My last MRI showed nothing according to the nurse. The Dr. is gone until Mon...haven't heard on the blood tests. Why do I feel I'm getting the run-around?? I am wondering who read the MRI...and what they looked for specifically!! Thanks again,
Karen
Gravatar # Re: Cancer of the Knee
by Karen Lawless at 2/20/2004 3:08 PM
Geraldine....Are we 8 hrs apart in time? It's 2:10 P.M. here. Quite interesting to me!!
Karen
Gravatar # Re: Cancer of the Knee
by GERALDINE at 2/21/2004 8:56 AM
Karen, not sure about the time difference between us, where abouts in America do you live, I come from Renfrew which is about 15 minutes from Glasgow (if you've heard of it). With your MRI scan make sure they know you are concerned about PVNS so they know what they are looking for. My first MRI was in September 2000 and they refused to do another one till December 2003, by that time it was'nt hard to miss since it was so advanced, it much more difficult to detect in the early stages if they don't know what they are looking for. Your health system is obviously very different from mine. Do you have to pay for medical treatment? In the UK we have free health care. The blood tests will certainly rule out anything such as cancer. Everything your going through just now is exactly the way I felt, trying to find an answer to why your in so much pain.
Geraldine
Gravatar # Re: Cancer of the Knee
by Karen Lawless at 2/21/2004 12:00 PM
Geraldine.....I'm in central USA...Kansas to be exact. We do not have free health care. We pay for health care insurance. Usually, it pays for most of the treatments, as I'm on Medicare (disability) and a supplemental Insur. This is the second MRI in 6 wks time. According to the Dr. it will be paid for as part of the testing to confirm a diagnosis. I hope so!! I will be anxious to see my dr. Are you in the Spring season yet?? Thanks, Karen L.
Gravatar # Re: Cancer of the Knee
by GERALDINE at 2/22/2004 3:39 PM
Karen, Coming to the end of winter here, spring is next month, thankfully. I was wondering whether your doctor has ruled out any damage to the cartilage in your knee, as this was another route my doctor took before PVNS. Something else to kep in mind is the fat pad around your knee cap I think I told you about my doctor thinking that was the problem with me for a while. It presents with similiar pain and is a very common problem in women, it requires surgery to remove the damaged part. Has your doctor mentioned any form of exploratory surgery? What kind of weather do you get in Kansas? Geraldine
Gravatar # Re: Cancer of the Knee
by Karen Lawless at 2/22/2004 4:52 PM
Hi...When I receive my lab results, that will determine, if I will on my own, go to an orthopedic Dr., as I believe my MD does not explore other possibilities. I have many questions regarding this to a specialist in these matters. We are ending winter here also, with Spring hopefully around the corner. We are quite hot in the summer upper 100's. We have alot of wind. Thank you..Karen
Gravatar # Re: Cancer of the Knee
by GERALDINE at 2/29/2004 10:22 AM
Karen, I think going to an orthopedic doctor would help, my GP which I think is what you call MD was of no use. I have been attending an orthopedic consultant at hospital for 3 years. I'm not sure what the same level of doctor is called in America. I've got my MRI scan on Friday to determine whether PVNS has re-occured in my knee, to be honest I'm more worried that it does'nt show a re-occurence because then it's back to finding out what's wrong again. Everything is frozen here today which does'nt help my knee as it seems to hurt more with the cold weather. Geraldine
Gravatar # Re: Cancer of the Knee
by zoe395 at 11/29/2005 6:37 PM
hello i am only 14, and i have terrible pain in both knees. when i walk, run clib up and down stairs or even just sit i get pains down the side of my knees and biascaly all over them. i have had this for about 5 years or longer. i have been to many doctors, and fianlly they have began doing stuff. i had x-rays and MRIs and i just finshed 6 weekesn of phyiscal theropy 3 days a week (which did nothing atall) my MRI and xrays came back normal. my physical theropist wants me to stop phyiscal theropy and go back and see another docotor. does anyone have any idea what could be rong with me? do u think i could have a type of knee cancer and would it show up on Xrays or MRIs? pleas plase e-mail me back at zfg50@yahoo.com thanks
Gravatar # Re: Cancer of the Knee
by Travis at 11/30/2005 8:39 AM
Unfortunately, while I sympathize with your situation, we are not qualified to provide medical advice here. It sounds like you have been consulting with doctors to determine the cause of your problem and I'm sure if they see anything to be concerned about, they'll let you know.
Gravatar # Re: Cancer of the Knee
by bekah boo at 8/29/2006 11:15 AM
In regards to Zoe, I'm having the same problems. Have been ever since 2003. I have been back and forth to doctors, and orthopaedics and physical therapy. The orthopaedic never ordered an MRI. Three years later I am here waiting for my insurance to approve it. I should here something today so I can set up an appt to go have it done. My left knee is WAY bigger than my right one. I can't squat or bend my leg hardly. I'm not sure what it is. When I bend my knee, or sometimes I don't even have to, I'll have this HUGE puffy part that sticks out to the left (observers right) of the knee cap. In my right knee that's not even there. I'm not sure what it is all I know is it's horrible. I can't even stretch in the mornings while laying in the bed because it hurts and feels like it's clinging and stuff. I'm not sure what it is. I go to bed with knee aches every night basically and I can't sleep with my knee bent, it has to stay straight 24/7. I can't really stand for more than 5 minutes becuase it feels as if my knee is about to cave in and I can't make sudden movements because the agility of my knee won't allow it. Any ideas or thoughts?

Thanks, Bekah.
Gravatar # Re: Cancer of the Knee
by blits29 at 9/2/2006 12:50 AM
hello when i was 15 i think, i got a bump on the right knee on the inside part of the knee well im 17 now and i still have it.. it only hurts if i hit it on something hard and i feel a stinging sharp pain and it lasts for about 20 seconds i have no clue what it is. It used to be red but now its my same skin color can anyone help me is it a mole or a ingrown hair?
Gravatar # Re: Cancer of the Knee
by julie at 1/14/2007 3:32 PM
FAO Bekah I have very similar problems to you ie lump the size of an egg top when cut off on each knee i have had an arthroscopy on one which found a small tear but the poain is still there I HAVE SINCE BEEN GIVEN EXERCISES TO DO but no change. I cannot kneel or bend my knees properly and just wondered if had resolved your problem desparate please help thanks Julie
Gravatar # Re: Cancer of the Knee
by tabby at 2/28/2007 2:42 PM
last june of 2006 i had surgery on my knee because i tore my lateral menicus, well of course my knee will hurt after surgery for awile but is kept hurting longer than is was supposed to and i couldnt walk on it and so went to my orginal ortho for the problem and he told me physcal thearpy will help and after awile i can go back to the actvies i used to do. well the pain kept coming and everything i took for it didnt work and my thearpst says that for some reason nothing is working like it should so i went back to the ortho and he told me to contiue thearpy and come back in two months but i wanted answers to why its still hurting after all these months, so i went to anoughter ortho doctor and he took some x rays and an mri and said i had chondromalacia and told me to continue thearpy and about 6 more weeks it should be better were i could do things like run again, will i contiued my thearpy and it still wont stop hurting so i go back to the ortho and he said that he does not know what is wrong with my knee that he has to send me to a special knee doctor so know im waiting to go to the doctor, im goin to decribe my pain and if you know what it is please help me i dont know what it is and it worrys me and my family!? my hole leg hurts not just my knee, i cant touch my leg in any spot or it will hurt, it feels like my leg is one big bruse, my knee cap doesnt stay in place which is causeing pain also so i wear a brace for it, but i can hardley walk on my leg sometimes the hole area around my knee will turn purple and red all of a sudden, i have sharp stabing pains going into my knee and upper leg and burnig sensations in my knee also and my knee as never stoped hurtin since june 06 and is counueing to hurt till this day if you know what it is or might please let me know. and i cant set or stand that long i only can lay down to get some cofort and i cant sleep because is hurts so much
Gravatar # re: Cancer of the Knee
by Reszner at 9/22/2007 10:05 PM
For the last two years, I've had a lump about the size of half a golf-ball on the backside of my knee. Back when I first noticed it, nobody in my family took any urgency to it, so I suppressed the stress, anxiety and fear of this for awhile. Back then my dad was striking and we weren't on any health plan, but even after things settled down, neither of my parents seemed to pay any attention to it, so I tried my best not to, either.

It's my 18th birthday, yes literally my date of birth, and I'm honestly having a paranoia attack. I've never heard of cancer on the back of the knee until I visited this site, so now I'm very scared. I'm writing now to attempt getting this off my chest and hopefully get some sleep.
Gravatar # re: Cancer of the Knee
by carrie at 9/27/2007 6:43 AM
I have had a small knot on the side of my right knee on the left side for 3 yrs now , I don't have a clue what it could be ! I went for a Mri yesterday hope the results will be in soon ! Carrie
Gravatar # re: Cancer of the Knee
by Andy Anderson at 11/13/2007 9:34 PM
Hey i am a student at the U of A and am experiencing cancer in one if my knees. I am going ti have it removed, but what can i do for pain in the meantime?
Gravatar # re: Cancer of the Knee
by basanta roul at 11/14/2007 11:44 PM
Hello I am suffering from knee pain since 4 years. actually i had an accident 15 years back, now i am 28 years old. Dr telling it is due to ligament tear and that has to reconstructed. but i am not convienced myself. actually the pain is localized over the tibia and it swelled. so plz give the advice.
Gravatar # re: Cancer of the Knee
by RobynHarvey at 12/22/2007 2:02 PM
Hello from Australia also Merry Xmas

I too had an injury to my left knee at work where the kneecap popped off and I pulled it back. Pain was extreme. I had some physio and it seemed to settle. some 6 months later I rolled over in bed and the knee cap popped to the side again.
I then has Xrays MRI which showed a tear in the meniscal which I had operated on and while in there the dr noticed it to be quite inflammed. A biopsy was done and it came back as PVNS. The dr wants to operate again but I am hesitant as they do not know a lot about it and I am concerned that I will be left with a stiff leg.
My work insurance has paid for the first op but the specialist says that the PVNS can not be proven to have come from the injury although I had never had a problem with the knee until I hurt it at work in Sept 06. Hope some one can help me with my decision of whether to operate again or not.
Rbyn
Gravatar # re: Cancer of the Knee
by ROSI at 1/30/2008 2:36 AM
I have the same problem ,it started in 2006 i fell for no reason on my right knee and it took 3 weeks icing every night ,there after i fell 2 more times but i was swimming and exercising...untill 2007 of august the pain on my left knee was increasing and i felt a lump or swelling in the back of my knee by october i started to limb the pain from 1-10 was over the top going down my leg so i thought maybe its my L -4 L-5 DISK ON MY LEFT i had yje same symptoms before they fixed it ..so i called my dr to get pain medication i cant afford mri or another operation i'm a widow and there is no one that can take care of me plus my dog (old too) has a tumor.. i tried the exercise accupucture that helped but i still cant bent down or walk normal if i'm down i have to roll over ..and come to think of that started about 3 ears ago but i laught it of saying oh old age if its cancer then i dont want know ..but it is strange that there are soo many knee problems /cancer popping up in tlast few years is the health dept/drs keep track. just wondering.
Gravatar # re: Cancer of the Knee
by Beth Smith at 3/11/2008 11:48 PM
If anybody has cancer of the knee, do a lot of research before ever having it operated on. Removing the cancer can make it spread to other parts of the body. Even amputating can spread cancer. I would go to a holistic center in Los Angeles that does hypothermia and low dose radiation which will dissolve the cancer most likely without spreading it. All conventional doctors want to do is amputate. They are in the dark ages. Be very careful before you listen to conventional doctors. Do your research and particularly in the alternative medicine field. Do the Moss Reports. See Ralph Moss for all clinics in the world that are having high success rates in curing cancer. Conventional doctors think their way is the only way but it isn't and they put people through surgery, radiation, chemo, etc. and they usually give a 50/50 chance of the cancer coming back. My only point is research statistical facts with other clinics and the way to find other clinics is the Moss Reports.
Gravatar # re: Cancer of the Knee
by Beth Smith at 3/11/2008 11:52 PM
The clinic that does hyperthermia and low dose radiation without operating is www.vci.org But be sure you do get the Moss Reports and look up Ralph Moss and you can read up on the Moss Reports. I went through breast cancer and never operated because I found www.vci.org through the Moss Reports and I have been cancer free for 8 years without ever operating.
Gravatar # re: Cancer of the Knee
by Beth Smith at 3/12/2008 12:08 AM
I was also sorry to read of the poor girl that had a tumor the size of a tennis ball and the conventional doctors said that they were going to start her on chemo and if the chemo didn't work they may have to amputate. It irritates me to hear what conventional doctors do in the cancer industry. There are 100's of chemo's to choose from. Doctors are blindly choosing a chemo based on God know's what. There is also a doctor in Long Beach named Dr. Nagourney who takes a small piece of a cancer tumor and tests it with many chemos to see what kind works on your type of cancer. There are so many types of cancer cells and finding the right chemo without testing first gives a very slim chance of killing off the tumor. This is why I would suggest testing the tumor through Dr. Nagourney before taking some sort of chemo that has a very small chance of working. There is another doctor that is the founder of IPTQ.com His type of chemo is being practiced by doctors in the U.S. The founder of IPTQ, Dr. Donato Garcia Perez uses low does chemo while taking insulin levels down which helps get directly to the cancer cells. He also changes the type of chemo every treatment. Using the same chemo over and over causes your body to build a resistance to the chemo and it becomes powerless after a few treatments but continues to weaken the body. I feel so sorry for people who don't do research and listen to their conventional doctors because they think they know everything. I promise you they don't. All I can say is research and list to statistical information of the success of the treatments you find. Anybody with cancer, try not to let fear stop you from finding higher success rates than 50/50. 50/50 success rate is the common conventional success rate, you can do better if you research. See Ralph Moss Reports! Good Luck!
Gravatar # re: Cancer of the Knee
by Linda at 3/17/2008 3:45 AM
I have pain in my right knee on the right side at the back. However my pain only occurs when I bend down on the floor in a squat position or when I fold my knee underneath me on a chair or the floor. I have been doing this all my life and with three small children need to do this often. However lately on rising or straightening my leg I cannot walk as the pain is so intense for a minute or so, but then disappears. Does anyone know or have the same symptoms.
Gravatar # re: Cancer of the Knee
by Carly at 3/17/2008 4:09 AM
Hi, I have recently started getting a terrible sharp aching in my Right Knee, it makes a clicking noise when i Bend it which i am told is Gas particles, i am getting shooting pains down to my leg and to my foot, i have a doctors appointment today, but i am terrified it is cancer, has anyone else experienced these symptoms. Carly
Gravatar # re: Cancer of the Knee
by GLW at 4/7/2008 2:14 PM
Hi, I have had chronic knee pain for almost 18 months. The only thing that helps is taking advil, but when I don't the pain is so bad I can barely walk. I also have a small lump on the back of my knee. I've had MRIs and X-RAYs done but no one really knows why I'm in this much pain... does anyone have any ideas???
Gravatar # re: Cancer of the Knee
by emily at 4/8/2008 11:37 PM
i am 15 years old and i have have a small bump on the outside of my left knee. it stated to hurt one day after a netabll game but since then the pain only comes and goes and isnt that severe. is this bump someting???
Gravatar # re: Cancer of the Knee
by Beau at 5/1/2008 9:30 PM
i am 14 years old and right below my right knee i have a bump the size of a grape and it always hurts and i have told my parents to let me get it checked and they always say no know a year has gone buy and its worse then ever
Gravatar # re: Cancer of the Knee
by sam at 5/11/2008 5:07 PM
i am 15 and i have had about 3 mris and about 5 x-rays and the doctors still have no clue what is going on in my knee. it stiffens really bad when i sitt for a long time. it hurts to bend it. and it twiches when i try to straighten it. anybody have a clue what is going on?
Gravatar # re: Cancer of the Knee
by anonymous at 6/13/2008 12:36 PM
I am 13. Ever since I was a child I get terrible pains is either my left knee or right knee or sometimes noth. Th pain is so unbearable that I can't sit, stand or do anything. I sometimes get the apin in the middle of the night and can't sleep for the rest of the night. The pain makes me panic and I've been suffering from this for a long time. I've been to a doctor and she just told me to exercise my legs and feet as much i can. One of my distant aunt's was diagnosed with cancer of the knee and now I'e become really afraid and refuse to go to a doctors! Im scared.
Gravatar # re: Cancer of the Knee
by annonoumous at 6/25/2008 4:43 AM
My friend thinks she has cancer and we are all very worried. Plz help and if you have cancer is it red?
Gravatar # re: Cancer of the Knee
by layla at 6/26/2008 12:33 PM
i hve a very bad pain in behind my knee cap it came on so suddenly and my knee seems warm in that area i was in bed at the time so there was no sudden movements now its just a dull ache and some times i cant walk been feeling tired and have had no appitite either doctor jus told me its a strain but i feel differently should i get second opinion
Gravatar # re: Cancer of the Knee
by fukcfuyh at 7/9/2008 5:39 PM
it feels like cgell or something in it and a 12 inch lunb
Gravatar # re: Cancer of the Knee
by jeff at 7/31/2008 12:10 PM
my knee herts so bad that when i stand or sit i have pains oll over the knee i read some where that if you have hip pains too it may mean you have cancer i have bolth i hope i dont have cancer
Gravatar # re: Cancer of the Knee
by kathy at 8/6/2008 10:56 AM
Hi, I had never experienced knee problems until two months ago. I have a hard bump the size of an olive on the right side of my right knee, it is uncomfortable (not painful) to kneel or when I touch it. I'm worried about it, please help.
Gravatar # re: Cancer of the Knee
by amy at 8/13/2008 5:00 AM
My 3 year old has a lump on the backside of his knee. It is about the size of a quarter and its rubbery and feels like it moves under the skin. I am quite worried about it so we have a doc appointment later today. Anyone else ever have anything like this?
Comments have been closed on this topic.